Ben
Ben received his Dravet Syndrome diagnosis as an adult, despite having had his first seizures, 3 febrile convulsions, at 5 months old. Mum, Liz, who tells their story.
About Dravet Syndrome
Often described as a complex form of epilepsy, Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. Discover more here.
Support and Information for Families
If you are living with Dravet Syndrome, you're not alone. Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants and how to join us.
Support and Information for Healthcare Professionals
Whether you suspect a patient in your care may have Dravet Syndrome, want to find out more about the underlying causes of the condition, or you're looking for information on supporting caregivers and their families, there's something here for you.
Join Us
We support all families affected by Dravet Syndrome. Find out how we can support you and your family here.
Please donate to help us support families, educate professionals and fund research
The Impact of Your Donations
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
Read MoreDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
