Get Involved in Research

Find out more about how you can take part in studies to improve understanding of Dravet Syndrome and, if you’re a researcher, discover what support we can provide.

Take part in research funded by Dravet Syndrome UK

By taking part in our research, you’ll help to improve understanding of Dravet Syndrome and find more treatments to benefit everyone affected by the condition.

Taking part can be anything from talking about your experience in a focus group, answering survey questions about living with Dravet Syndrome, or trialling new treatments.

The SCN1A Horizons Natural History Study; 

It is hoped that the SCN1A Horizons Natural History Study will start recruiting participants across the UK from early 2024. The study will open in phases across the country, starting in Scotland. Watch this space for more details.