Tania Lewis

Head of Fundraising

I joined the team as its first Head of Fundraising in April 2024. Most recently I worked as Head of Development and Communications at Citizens Advice Hammersmith and Fulham where I raised over £2 million in multi-year funding. Prior to this, I worked in qualitative research, events and marketing communications with a wide range of commercial organisations.

My role is to raise money to enable us to help more families with the support they need and to fund research to provide a better future for those affected by the condition.

I have been inspired by the families living with Dravet Syndrome, and impressed that this small charity has had such a positive impact in improving the lives of those affected by this very challenging condition.