Seizures in Adulthood

When someone with Dravet Syndrome reaches adulthood, the type of seizures they have can change and they may become less frequent. But, the majority of adults with Dravet Syndrome still experience regular seizures.

Overall, we need more research into seizures in adults with Dravet Syndrome. There’s still much we don’t know about the changing patterns of seizures in adulthood, partly because Dravet Syndrome is underdiagnosed in adults. But improving how seizures are controlled has benefits at any age.

What are the common seizures in adulthood?

The most common seizures in adults with Dravet Syndrome are generalised tonic-clonic seizures, often during sleep.

The tonic phase of the convulsion begins first with the person’s body suddenly becoming stiff. In the clonic phase, their body jerks rhythmically. These seizures typically last one to three minutes. Toward the end of the seizure, the jerky movements slow to a stop and the person’s body relaxes. During this time, they may lose control of their bladder or bowels.

Generalised means both sides of the brain are affected at the same time.

Watch the Epilepsy Society video below to find out what the experience of a tonic-clonic seizure may be like.

What are the triggers for seizures in adulthood?

Sensitivity to increased body temperature and fever continue, but the impact of these triggers on the frequency and severity of seizures is generally less than in childhood.

Find out more about common seizure triggers. 

What is different about seizures in adulthood?

When adults have seizures, the injuries they experience can be more severe. Injuries are a part of Dravet Syndrome and can be really upsetting for families of people of all ages.

The most common types of injuries are cuts, bruises and burns but more serious ones can happen. It’s important to look out for signs of concussion and seek medical advice if you need to when someone’s head is injured during a fall.