Our website
How we use cookies
Like most websites we use “cookies” to provide you with a good experience when you are using the website and allows us to improve it. A cookie is a small file which asks permission to be placed on your computer’s hard drive. Once you agree, the file is added and the cookie makes interacting with a website faster and easier to use, for example by automatically filling in your name and address in a text field.
We use session cookies that allow you to be remembered within the website, so any page changes or item or data selection you do is recalled from page to page. This means that you don’t get asked the same information that you’ve already given to the site. These cookies are temporary and are erased when you close your browser at the end of your surfing session. We also use cookies for the shopping cart, allowing you to purchase items from our store.
We also use web analytics cookies to help us understand what content is most useful to our visitors. They allow us to recognise and count the number of visitors and to see how visitors move around the site when they’re using it. This helps us to improve the way our website works, for example by making sure that users are finding what they need easily.
The cookies we set are:
- NET_SessionId = Is a cookie which is used to identify the users session on the server
- __RequestVerificationToken = Is cookie used to guarantees that the poster form data is valid and has not been tempered
- _ga, _gat, _gid, __utma, __utmz = Used by google analytics to measure user-interactions on websites
- cookiePolicyConsent = Used to record if user has consented to cookie bar and enabled google analytics
- BasketID = Used to log unique basket identify
Links to other websites
Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. Please check these policies before you submit any personal data to these websites.
Partners, Agents and Service Providers
We sometimes share information with other organisations and individuals to perform functions on our behalf. These include our webhosts, accountants, web traffic monitoring service and email marketing systems as well as people who help provide support to families, run events, work with us on research, assist in our marketing and fundraising. We may need to disclose information about you, when strictly necessary, to the police, regulatory bodies or legal advisors.
We will only share your personal information for specific purposes which are lawful and justified and the information we share will only be used for those purposes. We put in place safeguards to make sure that anyone with whom we engage also manages your information safely and .
Retention of your information
We take steps to ensure that the personal data that you provide is retained for only as long as it is necessary for the purpose for which it was collected. After this period, it will be deleted or in some cases anonymised. Where we have collected the personal data based on your consent and we have no other lawful basis to continue with that processing, if you subsequently withdraw your consent then we will delete your personal data as far as is reasonably possible for us to do.
Your rights
Data protection law gives you certain rights in relation to your personal data. These include: the right to access information held about you, the right to object to it being used for certain purposes (for example marketing), and the right to have personal data deleted or its processing restricted.
If you would like to exercise your rights, to the extent you cannot access your information by logging into your online account, please submit your request by using the ‘Contact Us’ page, by using the contact details above or by writing to the address below.or the det.
You can also ask us to correct any inaccuracies in your information. For example, we really appreciate it if you let us know if your contact details change. You can ask us to modify your details by using the form that can be found on the Contact Us page or by using the contact details above.
For the purpose of UK data protection law, the data controller is Dravet Syndrome UK. Registered Charity: 1128289 Dravet Syndrome UK, PO Box 756, Chesterfield, S43 9EB.
We are registered with the UK Information Commissioner’s Office (ICO) – the supervisory authority that handles data protection law in the UK: ZA229576
We always ask that you contact us in the first instance to resolve any data protection concerns. You also have the right to make a complaint to the ICO.
Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF
Email: [email protected]
Telephone: 0303 123 1113
Any dispute which may arise over privacy will be subject to this policy and the provisions of English law. We may change our Privacy Policy from time to time by updating this page. You should therefore check this page occasionally to ensure that you are aware of the most recent version which will apply each time you access this website.
This policy was last updated in January 2025.