Digestion and Toileting

Children and adults with Dravet Syndrome may experience difficulties with digestion and urination. Research suggests that around half may have difficulties with constipation and just over a third experience incontinence.

It’s not unusual for children with Dravet Syndrome to toilet train later than average. Depending on the level of disability, some may never be fully toilet trained and may remain incontinent throughout adulthood.

Getting support

An occupational therapist may be able to provide ideas on toilet training. If the person with Dravet Syndrome attends a special educational needs (SEN) school, they may also have suggestions.

Local NHS continence services can offer advice and experience. They may be able to supply practical items, such as nappies and pads. An epilepsy nurse or GP can make a referral to a local NHS-run service.