DSUK 2025 Conference - Parent/Carer Day
The Dravet Syndrome UK Conference for Parent/Carers will take place from 9am to 5pm on Saturday 15th November, in-person at the Hotel Pullman, London St Pancras, and virtually, online.
As Dravet Syndrome is such a complex condition affecting so many areas of life, we host a Parent/Carer Conference every two years, with the aim of providing parents and carers of children and adults living with Dravet Syndrome an opportunity to hear from leading professionals, to connect with other families, and to promote a sense of unity, purpose and knowledge within our community.
The conference covers the latest information about Dravet Syndrome and also provides expert guidance on the practical aspects of living with Dravet Syndrome. From learning about family rights, to discovering insights about the latest research and treatments; from asking experts your burning questions to sharing experiences with other families - our conference provides a friendly environment for furthering knowledge and understanding about living with Dravet Syndrome.
You learn so much from all the Professionals who are there at the Conference. You get to meet other families who are in the same circumstances as you and it makes such a difference. You go away from the Conference just feeling more empowered - more empowered because of information that you've been given and more empowered because you know you're not alone.
Register now
After registering, you will receive more information about the agenda and additional workshops taking place throughout the day.
Book your place
