DSUK 2025 Conference - Parent/Carer Day

Our next Parent/Carer Conference will take place in November 2025, dates and venue to be confirmed.

As Dravet Syndrome is such a complex condition affecting so many areas of life, we host a Parent/Carer Conference every two years, with the aim of providing parents and carers of children and adults living with Dravet Syndrome an opportunity to hear from leading professionals and to promote a sense of unity, purpose and knowledge within our community. 

While we make preparations for our 2025 event, you can view the agenda from our last conference here and in the short video below, to give you more of an idea of what to expect, you can hear more from parent/carers who attended our event in 2023.

Parent/Carers who attended the conference in 2023, share more about the event.
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Quotation

You learn so much from all the Professionals who are there at the Conference. You get to meet other families who are in the same circumstances as you and it makes such a difference. You go away from the Conference just feeling more empowered - more empowered because of information that you've been given and more empowered because you know you're not alone.

Scott - Dad to Thomas