Every Day in May For Dravet 2025

Header image for Tamara Ward's Every Day in May for Dravet event

Every Day in May For Dravet, now in it's 5th year, is well and truly underway!

Every Day in May For Dravet 

Supporter Tamara ‘Tats’ Ward, was inspired to set up the Every Day in May for Dravet challenge in 2021 when she was unable to visit her seven-year-old nephew Dominic, who lives with Dravet Syndrome during COVID. Since 2021, the event has grown tremendously, from 40 participants that first year, to 450 adults and children taking part in 2024 from all over the UK,  raising a phenomenal £200,000, helping us to support more families, educate more professionals and fund more research.


Join the Challenge

The challenge is to walk, run, swim or cycle 5km or 2km each and every day in the month of May. You can do it however, whenever and wherever suits you and mix it up as much as you like!  Whether you go it alone or join with a team, we will help keep you motivated throughout with WhatsApp groups and Spotify playlists as well as provide lots of support to help reach your fundraising goal.

This year, we're hoping to smash our 2024 success with even more participants raising even more awareness and funds! There are no registration fees or minimum fundraising targets so what’s stopping you?!

Register here for Every Day in May!

Once you’re registered, you’ll receive more information about the event and how to set up your fundraising page.

Sign up now


Thank you so much to everyone who donates, cheers from the side lines, and to everyone who takes part. If you'd like to support this incredible team, you can make a donation here.

Quotation

Every Day In May For Dravet was amazing to be a part of. It got me out the house more, got people asking about Dravet Syndrome as they were reading my T-shirts and it helped with losing some weight which was an added bonus.