Family Webinar: Clinical trials for Dravet Syndrome in the UK

Find out more about clinical trials in the UK 

Date: Monday 3rd February, 11am-12pm, Hosted on Zoom

Join our upcoming webinar aimed at providing parents/carers of individuals living with Dravet Syndrome with an overview of current and upcoming opportunities to take part in clinical trials for Dravet Syndrome in the UK. 

Hosted by members of our Medical Advisory Board, you will hear more out about the different options available to you, relevant eligibility criteria and key points to be considered before participating. 

This webinar is open to families who are registered with Dravet Syndrome UK.

If you are not already registered on our database, you can join here.

Speakers;

Andreas Brunklaus

Professor Andreas Brunklaus is a Consultant Paediatric Neurologist at the Royal Hospital for Children, Glasgow and Honorary Professor at the University of Glasgow. 

Originally from Germany, Professor Brunklaus trained at the Charité Medical School, Humboldt University Berlin and completed his child neurology training at Great Ormond Street Hospital in London and the Royal Hospital for Children in Glasgow. He obtained his MD from the University of Glasgow and has an ongoing research interest in epilepsy genetics, in particular sodium channel disorders. 

He is an international expert in SCN1A-related epilepsies and Dravet syndrome and is the author of several key publications. He leads international research collaborations developing cutting edge diagnostic tools in epilepsy genetics. He is lead of the Scottish Paediatric Epilepsy Network, has numerous national and international advisory board positions, is co-chair of the International League Against Epilepsy Task Force on Clinical Genetic Testing and editorial board member of the European Journal of Paediatric Neurology.

Helen Cross

Professor Helen Cross is Chair of our Medical Advisory Board. She is the Prince of Wales’s Chair of Childhood Epilepsy at UCL-Great Ormond Street Institute of Child Health, Great Ormond Street Hospital for Children, London and Young Epilepsy, Lingfield, and President of the ILAE (International League Against Epilepsy).

Professor Cross was awarded an OBE in 2015 for her services to children with epilepsy. She has been awarded two honorary doctorates, in Tartu and Gothenburg. She has research interests in early onset complex epilepsy, particularly outcomes and the role of intervention, surgery and the ketogenic diet, publishing more than 250 peer reviewed primary research articles and 100 review articles. 

She is currently Clinical Advisor to the National Children’s Epilepsy Surgery Service and Topic Advisor to the current update to the NICE guidelines on the epilepsies. She was President of the BPNA 2008-10 and has been instrumental in the establishment of the BPNA Paediatric Epilepsy Training Courses. She is on the Board of Trustees for Young Epilepsy, and President of Epilepsy Research UK.

Sanjay Sisodiya

Professor Sanjay Sisodiya is Professor of Neurology at UCL Institute of Neurology and honorary consultant neurologist at the National Hospital for Neurology and Neurosurgery and the Epilepsy Society.

He studied medicine at the University of Cambridge and Guy’s Hospital, and trained in Neurology in Oxford and at the National Hospital for Neurology and Neurosurgery.

He was awarded a PhD for working in brain magnetic resonance imaging in epilepsy. His key interests are in epilepsy, difficult-to-treat epilepsy, epilepsy genetics and treatment-response genetics and translational neurology, which are also his key research interests. He runs epilepsy and specialist epilepsy genomics clinics. He is the chief investigator of several international projects.