Hannah
Hannah had her first seizure at 3 months old. Now a young adult, her Mum Kelly, shares more about the challenges they've faced and the transition from children's to adult services.
Dravet Journeys
Receiving a diagnosis of Dravet Syndrome can be a frightening experience. Its important to remember you are not alone - other families are going through similar experiences. Here we share insights into their Dravet journeys.
We have gathered together a number of written stories and videos featuring children and adults from our Dravet Community. Find these through clicking on the filters, try searching for specific words e.g. "seizures", or simply browse the stories by clicking on the arrows. Always remember that, even though their symptoms and experiences may be similar, every child or adult with Dravet Syndrome is different and can present differently.
Kaiden
Kaiden had his first seizure at 4 months old. Mum, Alicia, shares their story.
Frank
At 4 months and 2 weeks old, Frank had his first seizure. Mum, Katie, shares their story.
John Joseph
John Joseph lives in Northumberland with his mum, Georgina and younger sister, Nyla. He had his first seizure at five months old. Georgina shares their story.
Harry
Harry lives with his Mum Emma and little sister Lilly in North Wales. He had his first seizure at six months old.
Sanvi
Sanvi had her first tonic-clonic seizure at 8 months old. Her parents, Jaish and Aditi, share their Dravet Journey.
Josie-Mae
Josie-Mae had her first seizure at three and a half months and was diagnosed with Dravet Syndrome at one year old. Mum, Lyz, shares their story.
Liam
Liam, who lives in Northern Ireland, had his first seizure at just five months old. Mum, Clare, tells their story.
