Support for Families Overseas

Dravet Syndrome UK is a UK-based charity and as such we are only able to support families based in England, Wales, Scotland and Northern Ireland.

If you are a family residing outside of the UK and you are looking for information on how to get a diagnosis, availability of treatments and other support local to your country, then unfortunately we are unable to advise and can only signpost you to a local organisation.

Below is a helpful list of other Dravet Syndrome associations or Epilepsy associations to contact for more information and advice.

Europe

Dravet Syndrome European Foundation, including the following European countries:

Croatia – Dravet Sindrom Hrvatska

Denmark – Dravet Danmark

France – Alliance Syndrome de Dravet

Germany – Dravet Syndrom e.V.

Italy – Dravet Italia Onlus

Italy – Gruppo Famiglie Dravet

Ireland – Dravet Syndrome Ireland

Netherlands – Stichting Dravet Syndroom Nederland/Vlaanderen

Norway – Epilepsiforbundet Dravet syndrom

Poland – Dravet.Pl

Portugal – Associacao Sindrome de Dravet Portugal

Serbia – Dravet Sindrom Srbija

Slovenia – Dravet Slovenija

Spain – Apoyo-Dravet

Spain – Fundación Síndrome de Dravet

Sweden – Dravets Syndrome Sweden

Switzerland – Dravet Schweiz Syndrome Association

International League Against Epilepsy (ILAE) – European Chapters

America

USA – Dravet Syndrome Foundation USA 

International League Against Epilepsy (ILAE) – North America Chapters

International League Against Epilepsy (ILAE) – Latin America Chapters

Africa

International League Against Epilepsy (ILAE) – Africa Chapters

Asia & Oceania

Japan – Dravet Syndrome Japan

India – Organisation for Rare Diseases India

International League Against Epilepsy (ILAE) – Asia & Oceania Chapters

Eastern Mediterranean

International League Against Epilepsy (ILAE) – Eastern Mediterranean Chapters