Transition to Adulthood Guide
A guide to support and inform families living with a young person with Dravet Syndrome; it provides practical advice on navigating the challenges of transition and managing the impact on family life.
Helpful Resources
As part of our mission to support families living with Dravet Syndrome and to raise awareness among healthcare professionals, we provide a range of guides and leaflets. Our aim is to enable families and professionals to access the best possible care and to have the most up to date information on the Dravet Syndrome. Resources can be downloaded from this section, alternatively hard copies can be sent out on request. Links to other websites which you might find useful can be found here.
Understanding Dravet Syndrome
Authored by the Prince of Wales’s Chair of Childhood Epilepsy, Professor Helen Cross OBE, this guide gives a brief overview of Dravet Syndrome, symptoms and treatment.