About Dravet Syndrome
A comprehensive introduction to the clinical aspects of living with Dravet Syndrome.
Whether you are an individual or family living with Dravet Syndrome, or a healthcare professional wanting to find out more about the condition, there is something here for you.
Support and information for families
If you are living with Dravet Syndrome, you are not alone. Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants, and how to join us.
Support and information for healthcare professionals
Whether you suspect a patient in your care may have Dravet Syndrome, want to find out more about the underlying causes of the condition, or if you’re looking for information on supporting caregivers and their families, we have a range of resources to help you improve your knowledge of the condition.
Our Research
Find out more about developments in Dravet Syndrome research.
For Families
Get detailed guidance and advice for families living with Dravet Syndrome.
Healthcare Professionals
This open-access resource is intended to provide information for healthcare professionals looking to find out more about Dravet Syndrome.
DSUK Family Guide
Download our essential guide aimed at parents and carers to support their Dravet journey.
Join Us
Join over 500 families in our UK-wide Dravet community.