About Dravet Syndrome

Dravet Syndrome is a rare, life-long and life limiting neurological condition. It includes seizures, intellectual disability and a range of associated health conditions known as ‘comorbidities’.

Around one in every 15,000 babies in the UK will be born with Dravet Syndrome.

In this section, you can find out more about all aspects of Dravet Syndrome. Click on the images below to discover more.

A toddler is being held by his parents. They are all looking out of shot, but they are smiling.

Seizures

Dravet Syndrome is characterised by prolonged, recurrent seizures. Discover more about seizures, their different types, and how they may change over time.

Elise with Mum, Stella & Dad, Phil

Comorbidities

Dravet Syndrome is not ‘just’ seizures. Comorbidities is a medical term used to describe the non-seizure aspects of Dravet Syndrome (sometimes called ‘co-occurring conditions). Find out more here.

Treatments for Dravet Syndrome

While there is currently no cure for the condition, it’s an exciting and hopeful time, with much ongoing research into new medicines and treatments. Find out about what treatments are available to manage Dravet Syndrome here.