Join Us
Join our Dravet community to gain access to the comprehensive range of emotional, practical and financial support services we offer.
Welcome to the area of our website that is dedicated to families. Here you can find useful information and get practical support in navigating the day to day challenges of living with Dravet Syndrome.
At DSUK, we’re here to guide you through these challenges, provide support and reassure you that you and your family are not alone. Our Dravet Syndrome Community is here to support you every step of the way. Click on the images below for detailed guidance and advice.
Family Guide
A comprehensive resource, reflecting the complex nature of Dravet Syndrome – it’s the culmination of knowledge, lived experience and insights we’ve gathered over 15 years, informed by the expertise of our Medical Advisory Board. Find out more here.
Apply for Grants
Find out detailed information about the various grants, assistance fund and awards that we provide for families.
Annual Family Weekend
Once a year we bring our families together at Center Parcs in Nottingham for an amazing weekend of fun and community support – read about it here.
Parent/Carer Conference
Every two years we bring together leading experts and parents/carers at our Conference, to share information and knowledge, provide updates and discuss the latest developments.
Supporting Siblings
Insights into life as a sibling of a brother or sister living with Dravet Syndrome and suggestions for providing support.
Emotional and practical support
We’re here to provide emotional, practical and financial support for families living with Dravet Syndrome. Click here to find out more.
About Dravet Syndrome
A comprehensive introduction to the clinical aspects of living with Dravet Syndrome.
Talking about SUDEP
SUDEP (Sudden Unexpected Death in Epilepsy) can be a difficult subject to discuss. Here we offer some guidance on how to start a conversation with your medical team on managing the risks of SUDEP.
Helpful Resources
A range of guides and leaflets to support families living with Dravet Syndrome.
Dravet Stories
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
Access Ava
The AccessAva tool helps you understand the law governing adult social care in England – find out more here.
In Loving Memory
Remembering the lives of loved ones, lost too soon to Dravet Syndrome.
Support for Families Overseas
If you’re a family residing outside of the UK, you can find out more about local support organisations here.