Language and Communication Difficulties

Problems with language and communication are common for people with Dravet Syndrome. The symptoms and how severe they are vary.

People with Dravet Syndrome can have difficulties in all, or just some, areas of language development. Some people’s language will be in keeping with their developmental age, while others may only communicate using a few words or be non-verbal. Some people can communicate using sentences but struggle with using language socially, particularly if they also have autism.

Speech and language therapy

Speech and language therapists assess all aspects of language and communication for both children and adults. They provide guidance and support to help people understand and communicate to the best of their ability. They also advise parents, carers and teachers about modifying someone’s environment, including simplifying language and using pictures to help with understanding.

Getting a referral

While it’s never too late to benefit from speech and language therapy, it’s best to seek specialist support as early as possible.

Any health professional can refer someone with Dravet Syndrome for speech and language therapy, such as their GP or neurologist. However, in most areas of the UK you can also ‘self-refer’ by contacting your local service directly. Speech and language therapy for adults with Dravet Syndrome is usually provided through learning disability services.

Alternative forms of communication

Speech and language therapists can also advise on alternative forms of communication that may benefit someone with Dravet Syndrome, including:

• Makaton – a simple form of communication where manual signs are used alongside speech. It also has a set of symbols
  
• an augmentative and alternative communication (AAC) device – a tablet or laptop that helps someone with speech or language problems to communicate
• The Picture Exchange Communication System®, or PECS® – a tool for people with little or no communication to share their wants and needs with parents, carers, teachers and peers.