Posted 3rd December 2024 in News
The study highlights that 90% of Dravet Syndrome carers were unable to continue working due to the sense of ‘constant struggle’ and impact on their mental well-being and quality of life.
Posted 8th October 2024 in News
We're delighted to announce that we have been selected by the Chan Zuckerberg Initiative (CZI) to receive $800,000 (approximately £600,000) over five years to accelerate our research programme.
Posted 26th June 2024 in News
We’re delighted to announce the appointment of Stephanie Smith to the Board of Trustees for Dravet Syndrome UK (DSUK),
Posted 23rd June 2024 in News
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024
Posted 6th June 2024 in News
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
Posted 30th April 2024 in News
The study highlights that feeding difficulties are very common in Dravet Syndrome, affecting 52% of those with the condition and up to one in five may need a gastrostomy (or feeding tube) at some point.
Posted 26th April 2024
Tania Lewis has been appointed as Dravet Syndrome UK’s first Head of Fundraising.
Posted 25th January 2024 in News
Katherine Raven has been appointed as Dravet Syndrome UK’s Head of Marketing and Communications following the promotion of Claire Eldred to Director of the charity last year.
Posted 3rd December 2023 in News
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
Posted 28th November 2023 in News
The SCN1A Horizons Natural History study recruits first patients
Posted 2nd October 2023 in News
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.
Posted 26th September 2023 in News
We’re delighted to announce the appointment of Alex Williams as Trustee and Treasurer for Dravet Syndrome UK
