We’re delighted to announce the appointment of Alex Williams as Trustee and Treasurer for Dravet Syndrome UK (DSUK), a charity dedicated to improving the lives of those affected by a rare, life-limiting and life-long form of epilepsy.
Alex is a talented Chief Financial Officer with two decades of financial leadership experience in life sciences, medical devices and technology sectors. His background spans innovative start-ups to top-tier multinationals in a range of diverse international environments. An accomplished industry thought leader, he is currently CFO of Axis Spine Technologies, at the heart of a team developing implant systems to improve clinical outcomes for patients undergoing spinal fusion surgery.
Alex joins DSUK at a pivotal time. The charity continues to go from strength to strength, growing year on year, and at a time when there are exciting medical and scientific developments related to Dravet Syndrome. His appointment is a critical element of the charity’s strategy to expand the Board and appoint someone with the specialist skills we need to grow.
“We have achieved a great deal in a short time, but there is still much to do”, said Galia Wilson, Chair of Trustees. “With his extensive experience in life sciences, medical devices and technology industries, as well as his passion for making a difference to families affected by Dravet Syndrome, Alex has the perfect combination of skills, experience and drive to help us achieve our strategic goals. We are so delighted to welcome him to our Board of Trustees”.
Alex’s career highlights include an executive role at global pharmaceutical business Zogenix, where he was instrumental to the scale and sale of a life sciences industry success story. It was while working on treatments for Dravet Syndrome that Alex saw first-hand what a devastating impact that this neurological condition can have on patients and their families. Committed to offering support, he now joins us on our mission to improve the lives of those affected through support, education and medical research.
“I’ve always had a passion for working with different people to create solutions that have a meaningful impact on patients’ lives. Over the last seven years, I’ve seen how challenging life is for those families living with Dravet Syndrome, particularly in the areas of under-diagnosis and family support. I knew I wanted to give something back to the DS community, so it’s a great privilege to join a charity with such an admirable mission.”Alex Williams
Alex joins the existing DSUK Board of Trustees, including Galia Wilson and Kelvin Hughes, both parents of children with Dravet Syndrome, John Lloyd, a specialist in charity governance, and Neil Williamson, an Epilepsy Nurse Specialist.