A UK wide study exploring the impact on caregivers of those living with Dravet Syndrome has revealed that 90% were unable to continue working due to the sense of ‘constant struggle’.
We're delighted to announce that we have been selected by the Chan Zuckerberg Initiative (CZI) to receive $800,000 (approximately £600,000) over five years to accelerate our research programme.
We’re delighted to announce the appointment of Stephanie Smith to the Board of Trustees for Dravet Syndrome UK (DSUK),
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
The study highlights that feeding difficulties are very common in Dravet Syndrome, affecting 52% of those with the condition and up to one in five may need a gastrostomy (or feeding tube) at some point.
Tania Lewis has been appointed as Dravet Syndrome UK’s first Head of Fundraising.
Katherine Raven has been appointed as Dravet Syndrome UK’s Head of Marketing and Communications following the promotion of Claire Eldred to Director of the charity last year.
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
