Dravet Syndrome UK announces new Head of Family Services
Dravet Syndrome UK is delighted to announce that Sandra Awuah, formerly Senior Social Worker at Enfield Children’s Service, is joining the charity as its first ever Head of Family Services.
Our News
Dravet Syndrome UK signs open letter to the Government calling for urgent investment into neurological research
Dravet Syndrome UK is proud to be joined with the Neurological Alliance to raise awareness and call on the UK Government to #InvestInNeuroResearch.
Introducing our new ‘Transition Guide’
Dravet Syndrome UK is delighted to unveil our new ‘Transition Guide’ - now updated with more information and practical advice to empower families with the expert knowledge needed to navigate the transition from child to adult services.
New study reveals severe lack of support for Dravet Syndrome carers
A UK wide study exploring the impact on caregivers of those living with Dravet Syndrome has revealed that 90% were unable to continue working due to the sense of ‘constant struggle’.
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
We're delighted to announce that we have been selected by the Chan Zuckerberg Initiative (CZI) to receive $800,000 (approximately £600,000) over five years to accelerate our research programme.
Dravet Syndrome UK welcomes Stephanie Smith to Board of Trustees
We’re delighted to announce the appointment of Stephanie Smith to the Board of Trustees for Dravet Syndrome UK (DSUK),
Little Moments Matter film launched for Dravet Syndrome Awareness Day
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024
Dravet Syndrome UK and Epilepsy Research Institute partner to invest in two future leaders in Dravet Syndrome and epilepsy research
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
Study finds half of people living with Dravet Syndrome experience feeding problems
The study highlights that feeding difficulties are very common in Dravet Syndrome, affecting 52% of those with the condition and up to one in five may need a gastrostomy (or feeding tube) at some point.