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  • Medical Advisory Board
    • Professor Helen Cross
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• About Dravet Syndrome
  • What is Dravet Syndrome?
    • A Brief History of Dravet Syndrome
    • What causes Dravet Syndrome?
    • Which genes cause Dravet Syndrome?
    • Genetic Testing
    • Gene Therapy Treatments
  • Seizures
    • Types of Seizures
    • Initial Seizures
    • Seizures in Early Childhood
    • Seizures in Later Childhood and Teenage Years
    • Seizures in Adulthood
    • Night-time Seizures
    • Managing Seizures
    • Seizure Triggers
    • Sudden Unexpected Death in Epilepsy (SUDEP)
  • Comorbidities
    • Autism
    • Challenging Behaviour
    • Attention Deficit Hyperactivity Disorder
    • Movement and Mobility Issues
    • Growth and Nutrition Issues
    • Digestion and Toileting
    • Sleep Problems
    • Infection and Immune Problems
    • Dysautonomia
    • Language and Communication Difficulties
  • Diagnosing Dravet Syndrome
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• For Families
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  • DSUK Family Guide
    • Family Guide Resources
      • Part 1 - About Dravet Syndrome
      • Part 2 - Characteristics of Dravet Syndrome
      • Part 3 - Managing Dravet Syndrome
      • Part 4 - Living with Dravet Syndrome
  • Supporting Siblings
    • Sibling Story - Aaliyah, sister to Saniyah
    • Sibling Story - Ellie, sister to Amy
    • Sibling Story - Ella, sister to Jake
    • Sibling Story - Ella, sister to Sebastian
  • Transition to Adulthood
    • Preparing for Transition
    • Impact on Family Life
    • Guidance and Further Information
  • Annual Family Weekend Away
  • Parent/Carer Conference
    • Parent/Carer Conference 2019
    • Speaker videos
      • New and Emerging Treatments for Dravet Syndrome
      • Genetics and Gene Therapy
      • Emergency Protocols and Rescue Medications
      • Quality of Life and 10-Year Follow Up Study
      • Sleep and Dravet Syndrome - Current Thinking
  • COVID-19 and Dravet Syndrome
    • COVID-19 Guidance - FAQs & Webinar Series
    • Support Services
    • 16+ Assistance Fund - COVID-19
    • Seizure Monitor Fund
    • COVID-19 Support - Useful Resources
    • Family Wellness During COVID-19
    • COVID-19: Focus on Adults with Dravet Syndrome Webinar
    • Summary of guidance on new national restrictions in the UK
    • Watch our 'COVID-19 and Dravet Syndrome: Latest Updates' webinar
    • DSUK survey
  • In Loving Memory
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  • Seizure Monitor Fund
    • Pulse Oximeter Machine
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    • Video Monitor
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  • 16+ Assistance Fund
  • Annual Siblings Awards
  • Annual Family Weekend Grant
  • Bereavement Fund
• Healthcare Professionals
  • Characteristics of Dravet Syndrome
    • Seizures in Dravet Syndrome
    • Comorbidities associated with Dravet Syndrome
    • Developmental delay and intellectual disability
    • SUDEP and Life Expectancy
  • Diagnosing and Treating Dravet Syndrome
    • Testing for Dravet Syndrome
    • Treatment and Management of Dravet Syndrome
    • What to Do If You Suspect Dravet Syndrome
    • The SCN1A-Epilepsy Prediction Model
    • Could it be Dravet Syndrome?
  • Resources
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  • Insight Articles
    • Article: SCN1A Horizons Natural History Study
• Our Research
  • Our Research Strategy
  • Research Achievements
    • Investigating feeding difficulties in Dravet Syndrome
    • Protecting people with Dravet Syndrome from Covid-19
    • Making Dravet Syndrome more visible with pioneering data collection
    • Exploring Dravet Syndrome via the Whole Genome Project
    • Exploring gene therapy with University College London
  • Current Research
    • Exploring gene therapy with Oxford University
    • Finding out why some people respond to treatment and others don’t
    • Highlighting emotional challenges faced by parents/carers
    • The Effect of Music Therapy on Behaviours that Challenge for Children with Dravet Syndrome
    • Transforming understanding of Dravet Syndrome – SCN1A Horizons Natural History Study
    • Advancing precision medicine: genome engineering for on-demand gene therapy in Dravet Syndrome
    • Understanding autonomic dysfunction in Dravet Syndrome
  • Future Research
    • Understanding the impact of climate change on people with Dravet Syndrome
  • Get Involved in Research
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