Current Research

From lab research to focus groups with caregivers, our current research is furthering knowledge and deepening understanding of Dravet Syndrome and its impact on families.

Projects we’re funding

Exploring gene therapy with University College London

Lead researcher: Dr Rajvindar Karda

Exploring gene therapy with Oxford University

Lead researcher: Professor Matthew Wood

Finding out why some people respond to treatment and others don’t

Lead researcher: Dr Ulrike Hedrich

Highlighting emotional challenges faced by parents/carers

Lead researcher: Professor Liam Dorris

The effect of music therapy on behaviours that challenge

Lead researcher: Leanne O’Keeffe