Posted 30th May 2022 in News
In a Final Appraisal Document (FAD), fenfluramine is recommended as an add-on to other antiepileptic medicines for treating seizures associated with Dravet syndrome in people aged 2 years and older.
Posted 22nd April 2022 in News
Further to recent news reports regarding concerns about the prescription of sodium valproate to women & girls of child-bearing age, please read our statement specifically clarifying use in Dravet Syndrome.
Posted 21st September 2021 in News
We’re excited to share encouraging interim results from Stoke Therapeutics’ Phase 1/2a US study of STK-001 in children and adolescents (aged 2-18) with Dravet Syndrome
Posted 7th September 2020 in News
DSUK welcomes the availability of Epidyolex via NHS Scotland as a treatment option for individuals living with Dravet Syndrome
Posted 12th November 2019
We welcome the addition of Epidyolex (cannabidiol) to help treat Dravet Syndrome, a rare neurological condition with limited treatment options. This decision offers new hope to patients & their families searching for better seizure control.
