Watch our new video for Dravet Syndrome Awareness Day 2023
Posted 23rd June 2023 in News
Please share our film and help us build more awareness of the impact of Dravet Syndrome.
News | Dravet Syndrome UK
Dravet Syndrome Awareness Day 2023 - What is Dravet Syndrome?
Posted 21st June 2023 in News
Dravet Syndrome is a devastating and life-limiting epilepsy. Find out more and help spread awareness.
Cricketing community comes together to support Dravet Syndrome UK
Posted 12th May 2023 in News
Surrey and Middlesex Cricket Clubs support Matt Dunn and family in a fitting tribute to his daughter, Florence.
Claire Eldred appointed Director at Dravet Syndrome UK
Posted 6th April 2023 in News
Dravet Syndrome UK (DSUK) has appointed Claire Eldred as its Director..
New clinical trial opening in treatment of status epilepticus
Posted 17th February 2023 in News
CRESCENT is a new randomised clinical trial opening in treatment of status epilepticus
NEW Family Guide launched on International Epilepsy Day
Posted 13th February 2023 in News
We've launched an updated and expanded version of our Family Guide! Find out more here.
NICE gives green light to fenfluramine
Posted 30th May 2022 in News
In a Final Appraisal Document (FAD), fenfluramine is recommended as an add-on to other antiepileptic medicines for treating seizures associated with Dravet syndrome in people aged 2 years and older.
DSUK statement on use of sodium valproate in Dravet Syndrome
Posted 22nd April 2022 in News
Further to recent news reports regarding concerns about the prescription of sodium valproate to women & girls of child-bearing age, please read our statement specifically clarifying use in Dravet Syndrome.
Highlights from the DSUK Conference 2021
Posted 16th December 2021 in News
Our biennial conference took online and in-person in Birmingham. Across two days we brought together over 280 professional & parents/carers with one goal in common - sharing the latest knowledge on Dravet Syndrome.
DSUK Supporter, Tamara, wins ITV Meridian Pride Of Britain Award
Posted 1st October 2021 in News
Tamara set up the #Run5KEveryDayinMay Challenge, inspired by her nephew, Dominic, who lives with Dravet Syndrome. We announced last week that Tamara had been shortlisted and now she has been announced as winner of the ITV Meridian Pride of Britain Award
Interim results from Stoke Therapeutics’ Phase 1/2a US study of STK-001 in children and adolescents (aged 2-18) with Dravet Syndrome.
Posted 21st September 2021 in News
We’re excited to share encouraging interim results from Stoke Therapeutics’ Phase 1/2a US study of STK-001 in children and adolescents (aged 2-18) with Dravet Syndrome
