Dravet Syndrome UK Winter 2020 Newsletter
Posted 18th February 2020
A wrap up of all our news from the past six months, and a preview of events coming up in 2020.
News | Dravet Syndrome UK
Dravet Syndrome UK bolsters team of Professional Advisors
Posted 17th February 2020 in News
Professor Helen Cross is appointed to the newly-created role of Chair and Dr Andreas Brunklaus joins DSUK's panel of leading experts in Dravet Syndrome.
Highlights from the DSUK Conference in London
Posted 5th December 2019 in News
Our biennial conference recently took place at the Tower Hotel in London. Across two days we brought together over 250 professional & parents/carers with one goal in common - sharing the latest knowledge on Dravet Syndrome.
Dravet Syndrome UK welcomes the decision to make Epidyolex available via the NHS
Posted 12th November 2019
We welcome the addition of Epidyolex (cannabidiol) to help treat Dravet Syndrome, a rare neurological condition with limited treatment options. This decision offers new hope to patients & their families searching for better seizure control.
Helen Evans takes up Director role at Dravet Syndrome UK
Posted 16th September 2019
Dravet Syndrome UK (DSUK) has appointed Helen Evans as its first Director. Helen brings a wealth of experience to the role, having worked as a charity director since 2008.
Broadcaster Natasha Kaplinsky OBE and Actor John Sessions join forces to raise vital awareness at The Ned
Posted 8th February 2018 in News
This year Dravet Syndrome UK will be celebrating 10 years of providing hope for families with life-limiting epilepsy and to mark this momentous occasion will be holding a fundraising dinner on Thursday the 15th March 2018...
